ICYMI: Gottheimer, Kean Introduce Bipartisan Resolution to Raise Awareness for Rare Genetic Disorder, Shwachman-Diamond Syndrome

ICYMI: Gottheimer, Kean Introduce Bipartisan Resolution to Raise Awareness for Rare Genetic Disorder, Shwachman-Diamond Syndrome

WASHINGTON, D.C. — This week, Congressman Josh Gottheimer (NJ-5) and Congressman Tom Kean, Jr. (NJ-7) announced new bipartisan legislation to designate November 7 of each year as National Shwachman-Diamond Syndrome Awareness Day, helping amplify awareness of a rare genetic condition that affects an estimated 2,000 Americans. Shwachman-Diamond syndrome (SDS) is a rare, often underdiagnosed condition that […] The post ICYMI: Gottheimer, Kean Introduce Bipartisan Resolution to Raise Awareness for Rare Genetic Disorder, Shwachman-Diamond Syndrome appeared first on Josh Gottheimer .